Playing with Tili
Help us, help her run at the beach again!
If you want to contribute and help us make this project a reality, you can become a sponsor. Check the right side of this page to do it.
It is very easy.
You pick the level of sponsorship you want and click on it.
Playing with Tili is an universal story, of a little girl playing at the beach. Due to its simplicity and charm, this tale can be lived and understood ny little kids in several languages. So we decided to make the english version, among with the spanish, french, and german. All the bilingual versions of the combination of this 4 languages, and a special edition with all of them.
My driven force*
This is Kiara.
She is an excepcional girl. Sparkling eyes full of life, full of intelligence. When she was a baby you could see the her eyes full of a world of wisdom to discover.
When she was 4 months old, she looked and behaved as a 6 month-old in size, weight and development.
That was untill the nightmare began...
She was one year and 3 months old when she started seizuring, and life as we know it, just vanished. She started to have some "distracted episodes", and it got worse.
No one knew why.
No one believed us. She was such a pretty, happya and well adjusted little baby.
We had to tape the seizure so her pediatrician took us seriously, and sent us to the neurologist.
It seems we got the wicked prized lottery ticket for a weird disease... West syndrome, is called. It is a very aggressive type of epilepsy.
The diagnosis was not good. Kiara started with 30 -40 seizures a day. She started taking awful drugs in order to stop her electrical brain storms. No one worked. Her "Salam Spam" seizures evolved, transforming her epilepsy in what is known as "the great evil", "grand mal".
Kiara still uses diaper.
She will never talk.
She has developed authistic behaviours due to her condition.
She can not attend school
not even special schools, because her seizures were never controlled. And people is scare that she hurts herself falling down in her brain`s electrical episodes.
She is in constant danger, because her seizures are everytime more intense.
Kiara was taking a couple of hours of particular therapy each day. Never enough.
Everything learned was easily forgot and erased with an unexpected seizure.
She was growing. Her health, her learning ability and her development seems to start delaying. Her condition ruins her sleeping habits. Kiara almost never sleeps, and when she does, her sleeping is light, not enough.
And when she doesn´t sleep, someone has to be up with her.
Her seizures continued and got worse, we lost trace of how many times we ended at the hospital because of her seizures. Awful scars in her beautiful face: the ear, the head, the forehead, the nose, the eye... and the body, the hip, the neck...
The doctor recommender for her to walk at the beach, and that was the momento, that- without even notice it, the story i worte as a kid, started her calling in my heart.
Kiara, my little angel fo broken wings, with all the consequences of years of uncontrolled seizures and bad fallings, was running, laughing and playing free at the beach.
She chatted in her own language with teh waves, played with the sand as it was a living soul, a new and marvelous friend.
It is not usual for her to smile...
That day at the beach, It hit me. I had to bring back to life the story of "Playing with Tili.
Everything was connected. When I convinced Alita to draw the book, the first thing she asked for were Kiara´s pictures. And that how Moni started breathing through the talented pencil of Alejandra.
Kiara is 14 today. A few days ago, she had a seizure and hurt her back badly, ehile the family where sleeping. She couldnt, move, stand or sit.
Kiara had spine cord damage. She was in danger to loose all her movement, and her life.
She had column surgery.
We still dont know if the doctors were in time to right the wrong, but we have hope, and need all the help we can get to see her full recovered, running at the beach again.
It will take time, therapy, money and patience for her to start walking again.
The main percent of sales of this book are intended to help Kiara to walk again.
All the inspiration, my driven force, is seeing Kiara running at the beach again. I need to see her Playing with Tili once more.
The creative process of Alita
￼The eyes are to big!!! - Yam complained.
And Alita, with patience, tried to understand Yam, and do the drawing again.
But Yam was stubborn and Alita ended deciding she was not going to draw anything else. And that was almost the ending of the story, but little did we know that when a drawing becomes part of Alita ́s inspiration, there is no way to avoid its fate.
￼So, she thought twice the proposal of getting back to the proyect again, but for Lucky us, she finally did. Her free spirit needed to spread her wings and fly, limitless, and Yam had a fixed idea of this particular story ́s universe. She was
about to quit, but “Playing with Tili” charmed her and Alita knew, just as Yam - that her drawings were the only ones able to give life to this adventure at the beach.
Alita, as you imagined,is Alejandra Aceves and her talented pencil is the one that gave life to the drawings of Playing with Tili. She is a very gifted and giving person,
In her twitter account @Histcotidianas, she illustrates and shares her drawings of the tweets and phrases thats inspires her. She has the ability to turn the daily matter into extraordinary events.
As a creative, and restless artist, Alita has the magic of a little girl which is reflected in her adorable drawings.
So, we have Alita´s drawings, and we already armed th 11 versions of the book, 4 of a single language, 6 bilingual and one multilingual
The idea is to offer all the versions in POD (Print On Demand), and on ebook. But our goal is to see a beautiful hardcover, full color book, in the hands of a smiling child.
So, we need to make it happen, and you can help us.
What will we use the money for:
We will print 1000 hardcover, 60 full color pages books in the four languages.
We will make the official "Book Reading" at the International Book Fair in Guadalajara (FIL)
We will manage to distribute the book in all the main bookstores of Mexico.
We will also produce the rewards and send them.
A percentage of the book sales will be spend in Kiara´s recovery.
If we reach 5000 euros, we will produce a special magnetized edition in four languages of Jugando con Tili
All the money we raise further than 5000 euros, is going to be commited to pay Kiara´s medical treatment.
"Playing with Tili" the Magnetic Version
The "book" has a metalliced scenary, and all the drawings of the book magneticed, with the separated text in paragraphs in each of the four languages. So the kids and their parents, while they read the story, can compare the languages they pick, placing the magnet among with the pics and the words.
About the Rewards
The best way to thank our sponsors, is sharing with them the universe of Tili.
We want to send them the ebook in versiona of one language:
Spanish, English, French, and German
And their bilingual versions:
Spanish - English
Spanish - French
Spanish - German
** English - French**
German - French
English - German
And the full 4 languages version.
We also have some fantastic rewards, the notebook of ideas, the pins, coloring book, the printed book, and some surprises more.
The book is ready to be sent to the printer. As soon as we got the money, it will take a month to produce it.
In the next month we expecto to deliver the book to the main bookstores in Mexico.
The 5 of december of 2014, we have the Book presentation at la FIL in Guadalajara.
As soon as we have the printed book, we will have the other rewards ready for our sponsors.
Meet Alita (Alejandra Aceves): Su twitter: HistCotidianas
Meet Yam: Yamile Vaena
Check Círculo Próximo
Jugando con Tili, hoy.